The news wasn’t horrible; it was ambiguous.
As is always the case with late afternoon appointments, Dr. Ari was a half an hour late. The door hadn’t even shut behind him when Adrienne blurted out, “What’s the news?” He sat and explained why he hadn’t called back to tell us the numbers. I got his point; sitting in the same room, reading each other’s body language and discussing the options in person, does make more sense. What it doesn’t do is take away the last two days of dread.
My CEA number is up to 11. Not crazy; just up. He explains that sometimes inflammation can cause the number to rise; it’s not a perfect test. The pain I’m convinced is a tumor? Could also be inflammation. He reminds me what my right lung has been through in the past 3 months.
I like a lot of Dr. Ari’s practices. The one I appreciate the most is his honesty. “I don’t know what it means”, he finishes. We talk about options. My lung is still healing; the CT or PET scan results would be hard to read. Dr. Ari throws out a few ideas. The three of us decide that waiting a month and retaking the blood test is the right answer. If the number is higher, a scan will show the tumor. If it’s lower, well, I still may be the miracle man.
We came home to a cake. A friend picked up the kids from school, took them to the library book sale, and then they baked us a cake. Quinn made the chocolate butter cream frosting herself; just like I taught her; and the way my Mom taught me.
After the three of them were finally asleep, Adrienne and I sat on the couch. I felt raw; my insides having received a once over from a cheese grater.
“Did I cry wolf in my last blog post?” I ask.
Adrienne considers my question then replies, “No. You provided insight into two days in the life of a cancer patient.”
She’s right. We have been through this so many times over the past (almost) 3 years. The highs and lows, the fears and elation.
So we’ll live with the ambiguity for another month. We’ll plant the summer garden, I’ll work on my book, maybe I’ll finally finish painting the kids room, and at the end of March, we’ll go to Southern Utah for our belated honeymoon.
And my brain knows what to do: be grateful for everyday I get to spend with my family.
p.s. Thank you to all of you who pray for me, think good thoughts for my family, and follow my story. Some of you I’ve known since kindergarten, some I don’t know at all. It makes me grateful for the connectedness of humans.
debyootant
March 8, 2013 at 12:53 pm
My summer bucket list includes going back & reading all you entries. I’m so grateful for your amazing insight on life and the perspective that it helps me keep and truely honored by your willingness to share with us. With warmest thoughts, D
jaydeyoung
March 9, 2013 at 9:53 pm
Thanks Debbie,
I thought of you today when my kids were dying their hair with juice from olives from the olive tree. Hope your family is well.
Jay
Naptimewriting
March 9, 2013 at 12:22 am
I don’t think I’ve ever known you to overreact. To anything. The point, though, is not what someone elae calls your writing. It’s *your* writing.
Posting that youre scared and unsure and waiting isn’t crying wolf. You didn’t catastrophize a small number. You rightfully worried about yet another oncology call.
Look, it’s your blog and your life. You’re allowed to feel anything you feel. Nobody is living in your skin, so nobody gets to judge too little, too much, too soon, too late…you feel, you live, you tell us what you want.
So if someone says a fearful, honest, raw post is crying wolf, maybe they haven’t stared down the same wolf you have.
jaydeyoung
March 9, 2013 at 9:56 pm
Even your comments are excellent writing. Can’t wait to see you see you next week!